monster

This pain is the hidden monster in my life....it comes in the night when I cannot distract myself from it, it burns, shocks, writhes, wriggles, eats away at my poor arm and there is nothing I can do, nowhere I can hide, no way to deal with it apart from medications so extreme that life itself is hardly worth living.

The ultimate question has to be......how long? How long before the pain becomes the victor in this battle - for battle it surely is.

At the moment I am winning. I am staring it down.
It is a monster. It is devouring my will, my strength, my joy.

It is called RSD.

Painful Shoulder Conditions- a patient's guide

Painful Shoulder Conditions- a patient's guide

Phantom Limb and Causalgia: The Tragic Enigmas

Phantom Limb and Causalgia: The Tragic Enigmas

RSD Helpline Support Group

RSD Helpline Support Group

Google Directory - Health > Conditions and Diseases > Neurological Disorders > Autonomic Nervous System > Complex Regional Pain Syndromes > Causalgia

Google Directory - Health > Conditions and Diseases > Neurological Disorders > Autonomic Nervous System > Complex Regional Pain Syndromes > Causalgia

Causalgia

Causalgia

This is what I have had since my carpal tunnel operation. The best therapy is distraction therapy.

RSD UK - Awareness, Education and Support for those involved with RSD/CRPS issues

RSD UK - Awareness, Education and Support for those involved with RSD/CRPS issues

RSD Alert - International eMagazine for the RSD community

RSD Alert - International eMagazine for the RSD community

RSDSA :: welcome

RSDSA :: welcome

I thought it would be useful to have RSD info in one place hence this blog. It can also be a place to explore the ways in which a) I have been affected by the condition but also, and more importantly perhaps b) somewhere to explain the ways in which I have learnt to cope with this condition. Learning to cope has been the hardest lesson I have had to learn in this life - and that includes the death of Glyn. When one first experiences pain the immediate thought is that it will eventually go away or that drugs will control the pain. RSD sufferers know that these options are not available.